Unknown: Hello everyone and welcome to today's spotlight on
Dana Farber resources series. Today we will be learning about
the patient family advisory councils and the roles that they
play at the institute with their program manager Tori Baggio.
Before I pass it to Tori, I do want to mention you can find
more of the spotlight on resources series on our Blum
YouTube playlists as well as our digital resource center. To
access our digital Resource Center Library Card program and
more you can visit www.dana-farber.org/resourcecenter.
All right, I'm gonna pass it to Tori.
All righty, thank you so much for the introduction Becca and
for having me here today. My name is Tori Boggio. I'm the
program manager for our patient family advisory councils here at
Dana Farber. We have two PFACs here at DFCI. One for our adult
oncology patients and caregivers, and one for our
pediatric oncology patients and caregivers in partnership with
Boston Children's Hospital. Our PFAC members are really a
resource to the Institute as they provide a patient and
caregiver perspective on number of different Institute wide
projects and initiatives that are happening. Throughout the
care continuum. Our PFAC Councils, although there are two
we do have one joint mission. And that's really these five
tenents here to help to disseminate information and
implement services that affect our patients and families to
support patients and their families becoming informed
advocates in their own care to offer that patient family voice
in partnership with leadership to inch initiate policies,
programs, projects and services within that patient care
environment, and to provide ongoing opportunities to hear
their voices, uplift these experiences and perspective of
those with lived experiences here at Dana Farber. So how does
PFAC help. Our PFAC members have the opportunity to directly
improve the experience for future caregivers by providing
that lense to projects that are going on now and happening in
the future. They provide feedback on projects and
initiatives. They generate their own ideas based on their own
experiences. They offer an insight from that patient
caregiver perspective, and really share their story and
that is so vital to what our PFAC members do. If you know a
patient or caregiver or if you are a patient or caregiver and
are looking for ways to uh give back to the institute. Please
feel free my contact is here. We would love to have a
conversation together about how you can possibly get involved
with our PFAC. I really wanted to take some time during this
highlight to highlight our some of our PFAC members testimonies.
So just here on the screen, I won't read all of them. But just
this one in the middle here "I saw how many of the traditional
milestones in the young adult journey can be disrupted and
impacted by cancer. After seeing this supporting teens and young
adults through and after treatment, along with the
support of all members of bereaved families are areas of
particular interest for me. Another here as a patient of
Dana Farber, the volunteer work for PFAC has proven to be very
rewarding. Being educated on access to health care
prevention, treatment, and transition care has been a gift.
Lending a voice to people who are underrepresented is a
privilege. Dana Farber has given me something well beyond
recovery. They helped me shape my purpose". So really take some
time to read about these testimonies, and learn just the
the why around PFAC members join. Not only is it an
incredible asset to our institute at large to have
pefect members who learn their stories and share their
experiences. But it's also a huge and very, very important
way to get involved with Dana Farber as far as volunteer
services opportunities are available. Thank you so much for
having me today. If you would like more information or to
learn more, please visit danafarber.org/pfac, where you
can always get in contact with me at
Victoria_Baggio@dfci.harvard.edu. Thank you again, Becca for
having me today. And I really appreciate your time.
Thank you so much, Tori. That was a great presentation and and
I really enjoyed learning more about the patient and family
advisory councils. I hope that it inspired more of you all to
get involved and just to keep an eye on what they are helping
with at the institute. Again, you can watch more of our videos
on our Blum YouTube playlist and our digital resource center at
www.dana-farber.org/resourcecenter. Have a great day.